Pam Cusick Senior Vice President at Rare Patient Voice
All Home Care Matters and our host, Lance A. Slatton were honored to welcome Pam Cusick as guest to the show.
About Pam Cusick, Senior Vice President at Rare Patient Voice:
Pam Cusick is an experienced research professional with more than 30 years of expertise in study design, implementation, and analysis. Her background in public health communications and research, coupled with her passion for patient advocacy, dovetail with Rare Patient Voice’s mission and vision. She hopes to expand Rare Patient Voice’s panels to include all patients and caregivers who want to share their opinions and impact their disease category.
Pam earned a BA in Psychology from Sweet Briar College, and a MA in Psychology from the New School for Social Research. She is Past-President of the Board of Directors and Scientific Advisory Council Lead for the Horses and Humans Research Foundation. In addition, Pam has recently been named a Laureate by the Insights Association! This recognition, given by peers across the industry, is a true lifetime honor—and she is “still taking it all in.”
As Senior Vice President, Pam’s focus is on the continued growth and success of RPV, with an eye on client services, business development, and oversight of patient outreach, panel management, and marketing.
About Rare Patient Voice:
Rare Patient Voice, LLC connects patients and family caregivers of rare and non-rare diseases with opportunities to share their opinions with companies and researchers by participating in all types of research studies. These include surveys and phone interviews, online bulletin boards, focus groups, clinical trials, and more.
While RPV began with a focus on rare diseases, we now welcome patients and family caregivers living with all medical conditions. We currently cover more than 1,500 rare and non-rare diseases and conditions. Over the years, we have paid patients and family caregivers over $15 million for participating in research.
We work with thousands of organizations, patient advocacy groups, and individuals to spread the word about RPV. Since launching in the United States in 2013, RPV has expanded across the globe. We now recruit patients and caregivers for research studies in the United States, United Kingdom, Canada, Germany, Italy, France, Spain, Australia, and New Zealand.